Boston University / International Association of Peer Supporters
My name is Martha Barbone and I am Interim Director of Operations for iNAPS. We are collaborating with Wallis Adams at the Center for Psychiatric Rehabilitation at Boston University to conduct a study to better understand how the COVID-19/ Coronavirus pandemic has impacted the work and volunteer lives of peer specialists in the US. I am writing to invite all peer specialists (including peer supporters, peer support providers, peer
coaches, etc.) to participate in the online survey that has been constructed by the Center and iNAPS. The survey will take approximately 15-30 minutes. Participation is completely voluntary and your answers will be anonymous. The survey information will be sent directly to the Center for Psychiatric Rehabilitation for them to analyze and to describe the findings. We will report the findings back to you through email or a newsletter.
TU Collaborative Invites You to Participate in Two Studies
Are you a peer support specialist who uses spirituality in your practice? If so, the Temple University Collaborative on Community Inclusion invites you to sign up for their study looking at psychological factors among peers who use spirituality and religion. “This study is completely remote, so contact us at email@example.com if you’re interested.”
The second study, on social connections, invites “adults aged 18 to 65 who have a diagnosis of schizophrenia, major depression, or major affective disorder to participate.” This would involve one online survey now and another in a few months. Questions? Contact Shinichi.firstname.lastname@example.org or 215.204.9664.
To sign up and take the survey, click here.
“Mapping the Disability Experience: Share Your Stories”
“We invite you to draw a map of your neighborhood or environment to capture how the coronavirus pandemic has impacted (or not) your use and understanding of space,” researchers at the University of Illinois at Chicago write. “This can include drawings/images of your home, your neighborhood, your city or beyond. Maps can come in many forms, styles, perspectives, and mediums. We are interested in collecting these maps to capture and better understand the experiences of disability and the environment during the coronavirus pandemic.”
Submissions will be accepted through June 30, 2020.
For more information or to participate, click here.
Questions? Contact Yochai Eisenberg, PhD, email@example.com (Courtesy of Elizabeth Stone)
Have You Ever Smoked, Drunk, Vaped, or Used Other Drugs? Or Do You Now? New Zealand COVID-19 Study Is Now Open to US Residents
“We want to find out how people are coping [during the COVID-19 pandemic and lockdown],” writes the New Zealand-based Centre of Research Excellence: Indigenous Sovereignty & Smoking. “We are especially interested in adults aged 18 and over who, before lockdown, regularly drank alcohol, smoked or used other tobacco products, or other drugs. We also want to hear from people who have taken up smoking or drinking or other drugs during this frightening time.” The study has been approved by the US-based independent review board SolutionsIRB and is now open to US residents. “The study website includes helpful Coping in Lockdown tips, tips on Dealing with Cravings, and information on alternatives to smoking tobacco.”
To participate or for more information, click here.
Recent Studies (2020)
How Are You Doing During the Pandemic?
Inquiring Researchers Want to Know.
“We”—fellow peers at the Collaborative Support Programs of New Jersey (CSPNJ)—“want to know how you are doing in these difficult times. For example, what has happened to your life and what kinds of help do you need? How have you helped others and how have they helped you? Thank you for answering these questions to help us understand your life right now!” The survey was designed by Peggy Swarbrick, PhD, OT, CPRP, who coordinates activities for the CSPNJ Wellness Institute. For more about Dr. Swarbrick, click here.
To take the survey, click here.
The University of South Florida and Magellan Health are currently conducting research to investigate the current landscape of peer support worker supervision in the United States (and US territories). If you are a peer support supervisor, or know someone that is, please consider participating in this survey!
Seclusion and Restraint (2019/2020)
National Coalition for Mental Health Recovery (NCMHR) aims to reduce restraint and seclusion practices in a variety of institutional settings in the United States. Many efforts have been made in this area for the past several decades, and some of them have led to significant changes in regulations and practice. NCMHR seeks input through two surveys to glean information about where we stand today, and how far we still have to go.
Your input is very important, and will help shape future discussions about this topic. The examples you give in the comment boxes will be especially important in this process of understanding current practices in these settings.
- Survey 1: Personal Experience – If you have experienced restraint or seclusion, click here.
- Survey 2: Organizational Experience – If you have worked for an organization that utilizes restraint or seclusion practices, click here.
If both apply, please fill out both surveys. Please pass this on to anyone else in your network with one or both of these experiences.” Although your responses will be anonymous, if you would like to be added to the NCMHR email list, you may include your email at the end of the survey.
Engagement in Therapy (2019/2020)
The study’s goal is to demonstrate the importance of recovery-oriented practices—including therapist empathy and a collaborative working alliance—and avoiding coercive practices on engagement in outpatient therapy.
If you are 18 years or older, have been diagnosed with a serious mental health condition that results in significant impairment in at least one life area—social relationships, ability to work, completing daily living activities, or meeting basic needs—and currently receive outpatient therapy, you are eligible to participate.
The online survey should take 20 to 30 minutes to complete.
Jason Mallonee is a doctoral candidate at the University of Pennsylvania. If you are interested in participating, please contact Jason at 808-639-3369 or firstname.lastname@example.org.
Recent Studies (2019)
The study, “Exploring Factors Associated with Job Satisfaction among Peer Support Staff Working in Mental Health Treatment Settings,” is seeking participants. For eligibility and goals contact: (email@example.com), or click here:
The Center for Psychiatric Rehabilitation at Boston University is conducting a study which aims to understand the experiences of individuals with a psychiatric condition with regard to engagement in activities to improve their physical health. To learn more, click here.
Leslie University and the Dept. of Veterans Affairs are seeking participants for a study on the role of work-hope, readiness, and job -search behavior among individuals living with mental health conditions. To learn more, click here.
University of South Florida’s Department of Psychiatry and at Magellan Health are seeking participants who currently supervise at least one peer support worker to complete an online survey about their training, supervision experiences and practices, and related views.. To learn more, click here.
Are you a researcher or work for a research institute seeking participants for a study of peer support workers and/or supervisors of peer support workers? If so, send email to firstname.lastname@example.org so we can add your research study to the list.
For past studies, click here.